Mar 6, 2008

Back to the Daily Routine

Well, we're back at home. Even though St. Jude feels like home now. There is a level of comfort when you are there that I can't explain. But every parent I have met there feels the same way.

We got great reports back from all the doctors. The tumor is "neutral" - no growth, no shrinkage. After a little more than two years in this battle, "neutral" is great news.

We ran into another Crainiopharyngioma kid, Stephen, while we were there. We met him as he was going through his radiation back in the summer. He could be Wiley's twin. There is a distinctive "Cranio" look. He has had another cranio growth removed back in January. He was looking great.

As I was sitting in one of the waiting area, a gentleman in his late 20s was walking around hugging the staff telling them "thank you". He was wearing a patient wristband. I over heard him tell a nurse it was his last visit as a patient. He was a cancer survivor. He now has three kids of his own. And thanks to St. Jude he is still here. St. Jude sees patients 10 years after treatment is finished.

Wiley is in a research program to study his type tumor. I pray that they can learn more from Wiley, and Hunter also, about this and how to minimize the damage it causes and the difficulties it causes.

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